Electronic Resources: Arizona TASH 2018

Links to information, visuals, and other resources:

Hierarchy of Language Prompts

When – not if

Communication ‘The Tone Hierarchy’

Limit Setting

In this House

Conference Support Cards

Friendship and Relationships:

You, yes you, need autistic friends: A guest post by Neurodivergent K

On Assigning Friendship

Self Understanding:

Yours, Mine and Ours: autism, self-advocacy, and setting limits

The pathologization of interest and curiosity

Therapy Defined: Self-Regulation

Self-understanding, Self-determination, Advocacy, and Activism:

The Teacher’s Kid – It’s not what you think…

Proud to be Myself: An Autistic Person on Garry’s Mod

H on Acceptance, Love and Self-Care: #AutismPositivity2015

Blacksmith at the Forge + The Music of Invention

Advocating: Love not Fear!

The link between self-understanding and self-advocacy

Disability Day of Mourning: The Loss of Innocence


Communication and Welcoming Dissent

Welcoming Dissent… Self-advocacy, the communication hierarchy, and rethinking tone

Welcoming Your Dissent: A Poem

Periods of Consolidation

Whisper Me Mom

Some of My Favourite Resources:

The Neurodivergent Narwhals: Lei Wiley-Mydske

Conversations that Matter: Norman Kunc and Emma Van der Klift

The Ed Wiley Autism Acceptance Lending Library

Ask an Autistic on Youtube (NeuroWonderful)

Autistic Families International

NeurodiveCast: The Neurodiversity Podcast by Alex Kronstein


Blogs that are MUST READS and Excellent Resources:

Neurocosmopolitanism

Eccentricities & Introspection

Radical Neurodivergence Speaking

Yes, That Too

Amy Sequenzia

Giraffe Party

Love Explosions

Michelle Sutton Writes

Different Kinds of Normal

Amazing Adventures Parenting Autistic Children

Respectfully Connected

30 Days of Autism: Leah Kelley

Autism Women’s Network

We Are Like Your Child

We Always Liked Picasso Anyway

Who Needs Normalcy?

Musings of an Aspie

Boycott Autism Speaks

Small, But Kinda Mighty

Chavisory’s Notebook

Intersected

The Autism Wars

Tiny Grace Notes

Unstrange Mind

Emma’s Hope Book

Ollibean

A Quiet Week in The House

Autistic Hoya

Just Stimming

Neurowonderful

Autisticook

Caffeinated Autistic

Real Social Skills

Autism Or Something Like It

Ed Wiley Autism Acceptance Lending Library

ACAT: Ala Costa Adult Transition Program

Paula C Durbin Westby

Invisible Strings 

Everyone Communicates

Autistic Self Advocacy Network (ASAN)

Diary of a Mom

Autistikids

Autism & Neurodiversity in the Classroom

Parenting Autistic Children with Love and Acceptance (PACLA) on FB

 

Independent Presses to Support:

Reclamation Press

Antonomous Press

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30 Days of Autism is a project designed to fight stigma, promote civil rights, and increase understanding and acceptance for those who process and experience the world differently.

© Leah Kelley, Thirty Days of Autism, (2018)

Posted in Arizona TASH, Autism, Autistic, Neurodiversity, TASH | Tagged , , , , | Leave a comment

When Someone Drinks your Mountain Dew: A Video Short by H

I came home after a long day at work yesterday and H was so excited to show me this video he made, and he has given me permission to share it here. It is only 6 seconds long – but it is adorable. H explained that if you listen, sometimes the claymation penguin known as Pingu sounds like he is saying things. I think H is right… And c’mon – it’s Pingu – need I say more??

It is completely ridiculous in the best way and it makes me happy to share H’s wonderful sense of humour. ❤ I hope it maybe makes you smile as well…

Video Description: This short shows a little penguin (Pingu) waddling over to a can of Mountain Dew (H edited the soda into the film) making cute humming noises and it kinda sounds like he says “My Mountain Dew.”  He approaches the soda, looks surprised, and then flips forward to look back through his own legs at some other penguins. Text reads: “Who the hell drank my Mountain Dew”🐧

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30 Days of Autism
is a project designed to fight stigma, promote civil rights, and increase understanding and acceptance for those who process and experience the world differently.

© Leah Kelley, Thirty Days of Autism (2018)

Posted in Autism, B films, making movies | Tagged , , , , , , , , | 2 Comments

Fabulous Fringes: A Short Film by Alex Kronstein

 I don’t know if you have had the opportunity to check out the work of Alex Kronstein, the ever-wonderful curator, creator, and host of the The NeurodiveCast.   Alex’s podcasts offer an alternative way to access information from a wide range of blogs related to Neurodiversity organized on a particular topic/theme.

Alex has created this beautiful short film based upon the poem Fabulous Fringes.

It is spectacular and I am so very honoured!!

 

This poem was written in response to being described as a radical fringe element… Bring it!!

Fabulous Fringes

I love the edges of things
places of intersectionality
where ideas meet
thinking is broadened
perspectives are shared

there is beauty in the edges
the fabulous fringes
that decorate our interactions
and build understanding

L. Kelley
January, 2014

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30 Days of Autism
is a project designed to fight stigma, promote civil rights, and increase understanding and acceptance for those who process and experience the world differently.

© Leah Kelley, Thirty Days of Autism (2014 -18)

Posted in Alex Kronstein, Autism, NeurodiveCast, perspective of others, poem, poetry | Tagged , , , , , , , , , , , | Leave a comment

The Neurotypical Wife: Welcome to Las Vegas

I was reading another hilarious post by The Neurotypical Wife and I requested, Please – oh please – do you think it might be possible that this could be made available in a graphic or a letter that I could print out to share with other family members who are struggling to adjust to this unplanned journey with Neurotypicality?

In spite of how stressed and busy she is, she came through, and suggested I post it here so that others could also benefit from access to this inspiring story.

❤️ Thank you, NTWife. You truly are an angel!

The Neurotypical Wife: Welcome to Las Vegas – Satirical #FlipTheScript text is framed in sea-foamish aqua blue with mid-century style starburst images. Link to PDF for full text: https://30daysofautism.files.wordpress.com/2018/01/ntwife-welcome-to-vegas.pdf 

 

Please check out more fabulous #flipthescript satirical perspectives and posts at The Neurotypical Wife on Facebook.

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30 Days of Autism is a project designed to fight stigma, promote civil rights, and increase understanding and acceptance for those who process and experience the world differently.

© Leah Kelley, Thirty Days of Autism (2018)

Posted in ableism, acceptance, Autism, Autistic, Journey, Neurodiversity, Neurotypical, satire, The Neurotypical Wife | Tagged , , , , , , , | 1 Comment

The Teacher’s Kid – It’s not what you think…

I had the opportunity this evening to enter into a discussion with a colleague: a fellow teacher who is also the parent of a five-year-old Autistic son.

So as we talked this man commented, “It is great that you are a teacher – I’ll bet you’ve been able to be a great advocate for your son within the school system. Our kids are fortunate.”

And I suppose this is true in many respects: my understanding of the system has supported us in navigating it in varying degrees and I recognize that it has been an advantage.

But… the thing is… that is not actually how I responded.

I might have caught him off-guard when I said, “No… my son has benefitted much more from my being a Social Justice Activist. Teacher-smeacher! It is ACTIVISM that has made the difference. Our Autistic, Neurodivergent, and otherwise disabled children need us to show them how to be activists so that they can advocate for themselves.”

I hadn’t really considered it before… but as I listened to my own words I knew they held truth for me…

As educators and parents we are positioned to model radical acceptance and to ensure the space and pace for children with disabilities to know and understand and feel pride in who they are. When they know themselves deeply and with respect – it is then that they can reject the message that they must conform to be okay, accepted, valued, or to belong.

H turned 19 today… and I am looking forward with excitement and pride at this fabulous Autistic and otherwise Neurodivergent man who now towers above me.

And too… I cannot help but look back and see that raising my son to feel comfortable with who he is and to understand that he can push back against injustice and discrimination and ableism is one of the most powerful things I have offered as a parent.

As H ‘s childhood recedes, to be honest – I am a little surprised that I feel no sadness or melancholy as I think back upon this journey.

But it is hard to feel anything like melancholy when I observe this spectacular human’s sense of self that makes him comfortable in advocating for what he what he might need – or not need – or need in a different way. Along with this confidence, he has developed a sensitivity to extend his understanding beyond himself. He understands that he experiences both privilege and oppression and how his experience of being disabled intersects with the lives and stories of other people who face discrimination or exclusion or injustice. I see him pushing back against oppression – even when it is not about him.  It is beautiful…

Looking forward…

Next steps…

Image of H and Craig sillouetted at the Othello Tunnels – in a similar position as the avatar and header image for 30DoA. Blue text reads: “Our Autistic, Neurodivergent, and other disabled children need us to show them how to be activists so that they can advocate for themselves.”

 

Posted in Activist, Advocacy, Autism, childhood, Disability, Educator, neurodivergent, Parent, prejudice, Teacher | Tagged , , , , , , , , , | 1 Comment

In this house – and outside too!

In this house we do acceptance ❤️
… and we do acceptance outdoors as well!!

I have had numerous requests to create an alternative version of the “In this House” image, so that it works for those who related to and loved the message of acceptance, but are more connected and rejuvenated by being in the woods or wilderness or just generally outside.
Here it is!
Yay!!

Image : Text in a variety of font styles and sizes reads: “In this house we do parallel play – We give each other space – We have time to delve into our own interests – We unashamedly spend a tonne of time outdoors – We stim like it’s nobody’s business (’cause it aint) – We love each other for our authentic selves – Because in this house we do acceptance!!” (Watermarked: Thirty Days of Autism: Leah Kelley)

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

As always, you are welcome to print the jpeg image from this post (with attribution) for personal or professional use in home/office/classroom. ❤️

    or…   even better…

You can support the Ed Wiley Autism Acceptance Lending Library and get this image on a thing, if you so desire, as it will very soon be added here: https://www.redbubble.com/people/ewautismlibrary/works/25918833-in-this-house-by-leah-kelley?asc=u&ref=recent-owner


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30 Days of Autism is a project designed to fight stigma, promote civil rights, and increase understanding and acceptance for those who process and experience the world differently.

© Leah Kelley, Thirty Days of Autism, (2017)

Posted in acceptance, Autism, Autistic, neurodivergent, Neurodiversity, stim | Tagged , , , , , , , , , , | 1 Comment

I am intermittence…

A frizzy-headed person wearing a wolf suit is standing in a pencil sketched boat (based on a drawing by Maurice Sendak's "Where the Wild Things Are"). Text on the boat reads "Whose story is this anyway..." and "LEAH".

I feel the coming and going of my capacities and resources. I am intermittence. I would like to be more at ease with this and trust to the natural process and rhythm of the tidal bits of me. I want to trust to my self-understanding and attunement. I want to – but there is this voice that comes with/to me at these times, and though I try to set my sail to not be caught up in that wind, I am drawn in by its siren song.  The well-worn tune plays and re-plays singing me to the rocky shore to crash upon the rocks of that which I fear I cannot do: I am clearly not enough.

In these times I am two…

Bisected by ableism…

I was writing about this recently – and about how I still am learning that this ebb and flow is natural for me. My way of being is not broken and I can reject the ableist messages that I have internalized around this. Though, I’ll admit I find that easier to say and to write about than to actually do…

I am intermittence
The coming and going
Of focus and attention
Of movement
Of pain
I am dichotomy

I am two
bisected by ableism
Where I live
Silently

Secretly
In stops and starts
Where the sticky glue of passing privilege
Creates the illusion of continuity
Hides the inconsistency

I am riding the wave
With unpredictable bursts of doing and not
It is the undoing of me

I am undone
Unfinished
A work in progress
Another incomplete project
Transient

I am intermittence
And this is a beautiful thing

Leah Kelley,
March 2017

Image: Photo of sky and mountans and rising moon in tones of blue with a sillouette of overhanging branches in the right foreground. A pencil sketched boat (based on a drawing by Maurice Sendak’s “Where the Wild Things Are”) is sailing across the mountans. A frizzy-headed person wearing a wolf suit is in the boat. Text on the boat reads “Whose story is this anyway…” and “LEAH”. Text of the poem “I am Intermittence” (above) is overlaid in white font.

 

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30 Days of Autism is a project designed to fight stigma, promote civil rights, and increase understanding and acceptance for those who process and experience the world differently.

© Leah Kelley, Thirty Days of Autism (2017)

Posted in ableism, ADD/ADHD, Disability, Disclosure, executive function, neurodivergent, Neurodiversity, poem, poetry, privilege | Tagged , , , , , , , , , , , | 3 Comments

Self-Care is Resistance!!

I have been thinking about the incredible endurance and perseverance of people who are fighting for human rights, for themselves and for others…

Activism is gruelling, slogging, hard work… and it is seemingly unending. It can be hard to step back and take a break and find space to be renewed (even a little) when you are committed to making change and there is so far to go… so much work to be done.

I get that it is hard to not be busy, because, I know for me at least, it feels like taking action is empowering. And, collectively, I believe we are going to make things better for people. Things will change.

I think too, it can be difficult to take a break or step back because that can feel like a lack of committment – and the dedicated activists I know are unendingly generous with what they offer of themselves.

I know I find that my busyness is a way of me being sorta okay in a world full of things with which I am absolutely not okay. It is a way to keep going and to resist…

But this is a long haul thing… and I noticing that I am not taking care of myself. And I think this is in part because when things are tough my tendency is to respond with “that means there is work to be done’ and then work alongside others to try to make a difference. However, lately, it feels like everything has intensified, because I seems cannot look away from the things I find horrific, and I absolutely do not want to be quiet or complicit, or to respond (or not respond) in ways that normalize the denial of human rights for other people.

I am struggling with this…  and working to understand how to find a balance so that I am not neglecting myself and so I can sustain pushing back against injustice over time. I am not quite there – but I think I might be moving in a good direction in reminding myself that self-care, too, is resistance!

Okay… I gotta go write a poem and do some art and daydream about unicorns now!!!

This “Self-care is Resistance!” Neurodivergent Narwhal image was created for this post by Lei Wiley-Mydske. You are welcome to print this spectacular colouring page (with attribution). How perfect is that!?!

Please note: The wonderful Neurodivergent Narwhal art and images in this post were provided by the ever-talented and creative Lei Wiley-Mydske and have been used with permission. I appreciate Lei and the amazing work she does with the Ed Wiley Autism Acceptance Library, and with AWN (Autism Women’s Network), Parenting Autistic Children with Love and Acceptance, and her blog, Autistic Times Two.

Lei also has a wonderful Red Bubble Store where you can get t-shirts and mugs and stickers and tonnes of other good things with narwhals and other cool art on them!! Eeeeeee!

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30 Days of Autism is a project designed to fight stigma, promote civil rights, and increase understanding and acceptance for those who process and experience the world differently.

© Leah Kelley, Thirty Days of Autism (2017)

Posted in #NeurodivergentNarwhals, acceptance, Activist, Collective Responsibility, letting go, limits, Love and Self-Care, social justice | Tagged , , , , , , , , , , , , | 1 Comment

In this house…

In this house we do acceptance ❤️
April 2017… Bring it!

Image : Text in a variety of font styles and sizes reads: “In this house we do parallel play – We give each other space – We have time to delve into our own interests – We unashamedly spend a tonne of time online – We stim like it’s nobody’s business (’cause it aint) – We love each other for our authentic selves – Because in this house we do acceptance!!” (Watermarked: Thirty Days of Autism: Leah Kelley)

 

 

 

Update: #IveBeenRedbubbled Eeeeee!

Check this out: you can support the Ed Wiley Autism Acceptance Lending Library and get this image on a thing if you so desire…

Here is the link: https://www.redbubble.com/people/ewautismlibrary/works/25918833-in-this-house-by-leah-kelley?asc=u&ref=recent-owner

You are also welcome to print the jpeg image from this post (with attribution) for personal or professional use in home/office/classroom. ❤️

_______________________________________________________

30 Days of Autism is a project designed to fight stigma, promote civil rights, and increase understanding and acceptance for those who process and experience the world differently.

© Leah Kelley, Thirty Days of Autism, (2017)

Posted in acceptance, Autism, Autistic, neurodivergent, Neurodiversity, stim | Tagged , , , , , , , , | 2 Comments

Behavior Plan For Parents of Newly Diagnosed Autistic Children

Behavior Plan For Parents of Newly Diagnosed Autistic Children:
  by Lei Wiley-Mydske

Your feelings about autism are constructed by living in a world that fears and stigmatizes disabled lives.  Your distress about an autism diagnosis are most certainly because of these unhealthy messages.  Please remember that your behavior in regards to your child’s diagnosis is a choice.  Signing this behavior plan means that you will always put the dignity, autonomy, and love for your child above buying into the dominant narrative of tragedy or the belief that autism is something that the Autistic person is doing to you.

  • I promise to never use my child’s most vulnerable moments for sympathy or to “raise awareness”.   I recognize that I am my child’s safety net against an often hostile world.  When I feel like sharing, I will ask myself if this is something that I would want others to share about me.
  • I will never blame autism when I have a hard time parenting my child.  Parenting is stressful at times, but rewarding as well.  This is true for ANY child and I will recognize this.
  • I will prioritize the voices of Autistic people over the “experts” as I recognize that Autistic people are the ultimate experts on their own lives.
  • I will throw out the myth of a “developmental window” and acknowledge that my child will grow and learn in their own time, in their own way with my love, guidance and nurturing.
  • I will never apologize for my child being openly Autistic.
  • I will look at every therapy offered to my child with a critical eye.  I will ask myself what is the desired outcome?  Is it supportive or is it attempting to change my child’s neurology? I will never force my child into therapies that vow indistinguishability or that seek to “fix” or promise a non-Autistic version of my child.
  • I will embrace the neurodiversity paradigm and celebrate my child as a beautiful part of the wide and diverse spectrum of humanity.
  • I will learn about the social model of disability and confront ableism when I see it.  I will learn about the disability and autistic rights movements and use my privilege to further the cause.
  • I will learn about Autistic culture and find Autistic friends, not just for my child but for me as well. I will  promote acceptance and lead by my example.
  • I will learn about identity first language and show my child that I am proud of their Autistic identity.
  • I will NEVER say that I love my child but not their autism.  I will recognize that autism is an integral part of who they are and shapes how they view, process and experience this world. I will love every part of my child.  I will never teach them shame  or internalized ableism.
  • I will presume that my child is competent and understands more than may be apparent. I understand that communication is more than speech and I will support my child’s communication in any form. *
  • I will never fight autism, but I sure as hell will fight for my child’s right to be exactly who they are in this world.
  • I will recognize that I am only human and I will make mistakes along the way.  I will forgive myself and do better.

Image: Green background with dark text that reads: Behavior Plan for Parents of Newly Diagnosed Autistic Kids https://goo.gl/WPpnrp autistictimestwo.blogspot.com

 For a printable version of this Behavior Plan, click here.

Image of printable version of this Behavior Plan – by Lei Wiley-Mydske ( https://drive.google.com/file/d/0B6Y4b9-mOvynb01yclh4bWZKWjA/view )

This article is shared here with the permission of the author, Lei Wiley-Mydske, and was originally published at We Always Liked Picasso Anyway. Please check out the other amazing posts there, and if you are in a position to do so, please consider contributing to support Lei’s amazing work at the Ed Wiley Autism Acceptance Lending Library (which you can read about here).

Thank you, Lei ❤️

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30 Days of Autism is a project designed to fight stigma, promote civil rights, and increase understanding and acceptance for those who process and experience the world differently.

© Leah Kelley, Thirty Days of Autism, (2017)

Posted in ableism, acceptance, Autism, Autistic, Diagnosis, neurodivergent | Tagged , , , , , , , , | 9 Comments